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Thread: Prostate Cancer

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    Default Prostate Cancer

    Husband of one of my wife's colleagues went in for a prostate exam associated with a life insurance policy, his PSA test was high and confirmed by MRI and biopsy as an "aggressive" prostate cancer with several cells outside the tumor but still within the prostate. Surgery in March after the biopsy heals then 3 months later a PSA test to see if anything metastasized. Right now, no chemo or radiation, but that may come.

    We socialize with them, and he is a cyclist, competitive, bought a Moots last year, rides quite a bit when his work allows, and he never had any symptoms or pain or discomfort, etc.

    Add to this my wife's brother-in-law has terminal lung cancer and her best friend who appeared to have beaten cancer of the thymus has a fast-growing tumor in his lung now and my friend dying from sarcoma a few years ago, I'm feeling a bit nauseous.

    I'm starting my reading. My annual physical is coming up, so I'll talk to my doctor. But what do I need to know?
    Jorn Ake
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    Default Re: Prostate Cancer

    When I saw the specialist for my brain tumour his key advice was “don’t google it. You’ll get it wrong and you’ll scare yourself senseless”
     

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    Default Re: Prostate Cancer

    This is the best advice I can give. Get close to someone connected to medical research at a high level such as NIH.
    straight talk and referrals to docs who's opinion are not encumbered are "out there".

    PS Do not Google anything ever.

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    Default Re: Prostate Cancer

    Clock keeps ticking Jorn... One of my buddies is going through the prostate thing like yr friend...
    surgery in March also...
    Quite a few friends also suffer from a-fib to various degrees.. and are working toward adaptations to that.
     

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    Default Re: Prostate Cancer

    Cancer sucks. All the best to those afflicted and those who care for them!
    Guy Washburn

    Photography > www.guywashburn.com

    Most people wait for the muse to turn up. That's terribly unreliable. I have to sit down and pursue the muse by attempting to work.
    Nick Cave

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    Default Re: Prostate Cancer

    I heard from a mutual friend a college mate is terminal. Not sure how the prostate cancer wasn't diagnosed sooner.

    I know others who have lived a very long life after diagnosis.

    A yearly physical is a must.
     

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    Default Re: Prostate Cancer

    I think this is the year I have the option to include a PSA test in my physical. I think I also get my 2nd colonoscopy this year as well. Happy birthday to me I guess. Seems like there are more accurate tests in development. Current one only tests PSA level, not whether or not you have a tumor or what type of tumor you have. That has to be confirmed by biopsy, MRI, etc. And even then you may have a slow growing tumor that will never get you. You'll die of something else before it gets going. And I've talked to at least one person who says they wouldn't have done the surgery if they knew what the physical conditions would be like afterwards with residual pain, incontinence and impotence. Every hospital seems to have a device that will do it perfectly, and they advertise it constantly on TV and radio, so all I can figure is that there must be an industry surrounding the disease that makes a lot of money off of the patient's impulse to "get it out asap" when the results are in. On the other hand, a college friend's father woke up one morning with a back ache, and that was metastasized prostate cancer that ended in a horribly painful death.

    I've been reading a bit. Seems like being asymptomatic is very common. No discomfort, no urinary issues. Just go into the doctor and the PSA test comes back elevated above a particular range. Some debate about the course of action given elevated levels, whether to go straight to biopsy or something less intrusive like manual exam or MRI. Or just monitor the levels and establish a rate of elevation. So if you are at 4 and go to 5, but that took 5 years to go one digit then just keep watching. But if you are at 4 and go to 10, then something more intrusive might be required to confirm. Cycling can elevate the PSA levels evidently, but I don't know if that is a general elevation or just don't go cycling the morning of your PSA test.

    The recurring advice is to see your doctor regularly and have an open dialogue about quality of life and goals in the context of PSA level monitoring and make decisions thusly.
    Last edited by j44ke; 3 Days Ago at 12:12 PM.
    Jorn Ake
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    Default Re: Prostate Cancer

    3yrs ago today FIL was transported to Baylor Dallas following diagnosis of a brain tumor. What began as a typical day getting breakfast turned very bad.

    Ended up being prostate cancer that had metastasized on his brain. That tumor was knocked out relatively easily. Prostate cancer, however, was stubborn, and aggressive.

    I’ll never not believe that it was misdiagnosed a year earlier, nor do I think he got the best care throughout the process. Prior to dx, he was getting all the right exams, ate well, was fairly healthy. He was an MD.
    -Dustin

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    Default Re: Prostate Cancer

    Quote Originally Posted by Colinmclelland View Post
    When I saw the specialist for my brain tumour his key advice was “don’t google it. You’ll get it wrong and you’ll scare yourself senseless”
    Quote Originally Posted by Too Tall View Post
    This is the best advice I can give. Get close to someone connected to medical research at a high level such as NIH.
    straight talk and referrals to docs who's opinion are not encumbered are "out there".

    PS Do not Google anything ever.
    I'll echo this advice. Pathology after my resection led to a prognosis of 5 year survival <50%. Fortunately I have an old classmate who is a senior researcher in the field at Sydney Uni, he and his oncologist mate reviewed the data and were much more positive. 8 years later I'm still here and follow up colonoscopies have all been clear so it looks like they were right.

    My father died a couple of weeks ago with prostate cancer but not of it. He was 92.

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    Default Re: Prostate Cancer

     

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